So, you've just been newly diagnosed with Parkinson's Disease. What are you experiencing in response to this news?
Is it shock?
…or, fear of what’s to come and how your life will change over time?
…maybe wonder, at how you got this disease?
…anger at having been saddled with this condition?
…or perhaps relief, to finally have a name for the symptoms you’ve noticed for some time?
You may be feeling one or any or all of the above! In any case, this is a pivotal time in your life. The choices you make about how you move forward from here are yours and yours alone.
As you have no doubt already learned, there is currently no cure for Parkinson’s (although there are some great people working hard to find a cure), and thus you have no choice about whether or not you live the rest of your life with the disease. If you have been diagnosed, as things stand today, you will spend the rest of your time here on this earth with Parkinson’s.
Okay, so you don’t have any choice about that. But, you do have choices about other things; starting with what your attitude will be towards having been diagnosed with this disease. You can choose to be angry, resentful, frustrated, or ‘poor me’. Or, you can choose a path of acceptance, which is the path of power.
Although you may find yourself, over time, losing some control over parts of your body, you will always have control over how you deal with the situation and what you’re going to do about it.
At this moment, you may not see how you have control over anything. But, that is only because you don’t have all the information yet.
Remember the phrase, “knowledge is power”? You just need to gain some knowledge! Then, you’ll have the power to make informed and intelligent choices about how you will deal with and manage your condition.
Now that you have been diagnosed with PD, this website can help you get started on your quest for information. And, do start right away! Even if you feel you aren’t quite at the point of acceptance yet.
Gathering information and acquiring knowledge about Parkinson’s, available treatments, and how to manage life with the disease, can serve to move you closer and closer to that point.
So, go ahead and read through the information provided on this site. You might as well, since you've been diagnosed and you’re already here, right?!
You will find plenty of content here to fill out your current knowledge base about Parkinson’s, including treatment options, both traditional and new, as well as alternative and complementary.
There’s even one new treatment that is having remarkable results - as we speak! - with alleviating the symptoms of Parkinson’s, thus giving back the lives of many who have been diagnosed with the disease! You will find everything you need to know about that here, as well. Check out diagnosed, and the science . Reading thoses two pages will give you a good start to getting this disease under control!
Once you have been diagnosed with PD and you’ve studied everything on this website, continue your quest by taking these next steps…
1. Write out a list of questions to ask your doctor and then go see him/her. Here are few questions to get your list started…
a. How will my life be affected by Parkinson's disease? My work, my relationships, my retirement, my growing need for help?
b. How often do I need to come in for a checkup?
c. What treatments are available for me at my stage of the disease?
d. Which one or ones do you think is/are best for me, and why?
e. What is the effectiveness of these treatment options?
f. Are there side affects I need to be aware of?
g. Is there anything I can about the side affects?
h. Are there any certain problems related to my disease or the treatments that I should notify you about right away?
i. How will treatment affect my daily activities?
j. Will the treatment start working right away, or will it take time? How much time?
2. Check out your local library and read anything that jumps out at you on the subject of Parkinson’s.
3. Locate a support group, if you feel that would help. Even if you don’t, give it a try. You may be pleasantly surprised at how much it could help your attitude and mind set.
4. Locate and join a Parkinson’s Disease organization in your area.
5. Keep the people around you apprised of your condition.
6. Continue to do what you always have done, as much as possible. Some things may become more difficult, but do what you have to do to overcome the obstacles so you can continue your daily activities.
7. Keep a positive attitude to manage the emotional and psychological aspects associated with Parkinson’s.
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