You love your caregiver and they love you. They can't fully understand what it is to be in your situation, living with Parkinson's, and you can't fully comprehend their situation. It is very hard on both of you, and you both want the best for one another. Learning to support one another in this experience is a good way to keep the relationship healthy.
Both your health and the health of your caregiver are really important. You both have physical and emotional needs. Communication and compassion are key. You don't want your caregiver to burn-out. Both your needs are equally important. The more difficult time your caregiver has with balancing his or her responsibility to you and to themselves, the more you will suffer as well.
You can support your caregiver by encouraging them to do things for themselves. You may want to suggest to them that they seek counsel from someone they trust, such as a spiritual mentor, a social worker, a psychologist or a therapist. Your caregiver is on their own emotional roller coaster and talking about their feelings and fears with someone objective (but experienced) can prove very healing and worthwhile. (They will return to you, their loved one, with renewed energy and courage.)
Telling your caregiver that you want them to be healthy and that their needs are as important as yours can be priceless. You could suggest that your caregiver attend a support group for people who are dealing with similar challenges. Support groups are excellent for both you and your caregiver, and are a reminder that you are not alone; others are having similar experiences and can offer valuable support and guidance.
||You are both under a great deal of stress. This is normal and there are ways to prevent that stress from deepening and taking over the relationship. Both of you educating yourselves on the other person's process can be very empowering. Hope and humor with the situation, and with one another, can be extremely powerful beacons. Helping each other maintain a persevering, optimistic attitude can steer you clear of the rockiest waters. (You both need your own boats in good condition!)
You can learn about actively supporting your body health by clicking here: glutathione. This link takes you to some exceptional information about a recent discovery in the treatment of Parkinson's disease and other degenerative diseases.
Here are some excellent links, articles and resources to help your caregivers support themselves and care better for you. Encourage and support your caregiver by leading them to these valuable sites.
CARE - Caregivers Are Really Essential
This page provides quality links to articles and information for people, either directly or indirectly, caring for people with Parkinson's. It is a very comprehensive site and is an excellent resource for your caregiver.
National Alliance for Caregiving
The Alliance's mission is to be the objective national resource on family caregiving with the goal of improving the quality of life for families and care recipients. The NAC partnered with the National Family Caregivers Association and created "Family Caregiving 101" which provides quality information on how to deal with the diverse challenges of caregiving.
National Family Caregivers Association
The National Family Caregivers Association (NFCA) supports, empowers, educates, and speaks up for the more than 50 million Americans who care for a chronically ill, aged, or disabled loved one. NFCA reaches across the boundaries of different diagnoses, different relationships and different life stages to address the common needs and concerns of all family caregivers.
To top of page
Return to Self Help Page